NDIS - Epilepsy Queensland and the National Disability Insurance Scheme

The NDIS (National Disability Insurance Scheme)

The NDIS is an avenue of support for Australians with a disability and/or significant functional impairment. Through access to individualised support that meets the person's needs, parents and caregivers may also benefit from this support to enhance their caring role and wellbeing.

The NDIS gives you choice and control in how and when supports and services are provided. With the National Disability Insurance Scheme, funding will go directly to you to choose the supports you need to live your life well.  

The National Disability Insurance Scheme gives all Australians peace of mind that if they, or their child or loved one is born with or acquires a permanent and significant disability they will get the support they need across their lifetime. 

All Australians who meet the eligibility criteria are legally entitled to the National Disability Insurance Scheme funding for necessary and reasonable support.

How Epilepsy Queensland can help

  • FREE NDIS pre-planning session with a knowledgeable Epilepsy Queensland team member
  • Pre-planning support – including a comprehensive workbook to help you with the process
  • Information and support to help prepare for meetings with the NDIA
  • A range of factsheets and resources for participants, carers and families
  • Registered under Innovative Community Services, we can provide services aligned to seizure management, health and wellbeing and other peer connection workshops and programs. Contact us for more information on these.
  • Registered under Capacity Building - Improved Daily Living, we can provide the following services under the participants NDIS plan:

– Development or review of  a comprehensive Epilepsy Management Plan. Epilepsy Queensland recommend that these plans are updated yearly to ensure they are a practical resource for the support team. These plans are then signed off by the person’s GP or Neurologist.

-Information relating to assistive technology options aligned to the individual’s seizure presentations, such as seizure detection & alert device; trigger management aids e.g. cooling mattress toppers; anti-suffocation pillows etc.

– Training on Understanding Epilepsy including seizure types, triggers and seizure first aid; and Administration of  Midazolam

– Support, information and referrals to other support services as needed

– Letters of support for NDIS access, review or change of circumstances.

Am I eligible?

You may be eligible for the National Disability Insurance Scheme if you meet the eligibility requirements available on the National Disability Insurance Agency (NDIA) website. You need to evidence that the condition is permanent or likely to be permanent; and that it significantly impacts on your day to day functioning and/or ability to participate meaningfully in community or vocational/employment pursuits.

The application needs to focus on the IMPACT of the epilepsy – in areas such as mobility, social, self-management, self-care, learning and communication – rather than just a confirmation of diagnosis. This way, we are shifting the focus away from the responsibilities of the medical system (which NDIS do not fund) to how the epilepsy impacts on the persons day-to-day functioning, safety, independence and wellbeing.

For further information and support, call the Epilepsy Queensland NDIS team on 07 3435 5000 or email ndis@epilepsyqueensland.com.au