Epilepsy Helpline for information and support - Epilepsy Queensland


Available weekdays on 07 3435 5000 or 1300 852 853 (outside Brisbane) between 9 am- 4 pm AEST (Monday to Friday.)

What is the Epilepsy Queensland helpline?

The Epilepsy Queensland helpline is a phone service to support people living with epilepsy and their families, carers, and those that support them in health, education and disability support settings. Connect with one of our team members specially trained in epilepsy management at a time that is convenient for you.

How can you access it?

The Epilepsy Queensland Helpline hours are 9 am-4 pm (Monday – Friday) excluding public holidays. 

Call 07 3435 5000 or 1300 852 853 (outside Brisbane) or email services@epilepsyqueensland.com.au.  

If you urgently need to speak to someone regarding your epilepsy, please contact your GP or phone 000 for emergency medical assistance.  

Access assistance

If you require assistance accessing our helpline, please find the phone numbers for some helpful services below.

Translating and Interpreting Service (TIS) provides access to phone interpreting services in over 150 languages: call 131 450

The National Relay Service (NRS) is a government initiative that allows people who are deaf, hard of hearing and/or have a speech impairment to make and receive phone calls.

There are many relay call options under this scheme:

Voice relay service number: 1300 555 727

Text telephone (TTY) number: 133 677

SMS relay number: 0423 677 767

Who will I be speaking with?

You will be speaking with one of our friendly and compassionate team members. Our multi-disciplinary team are from a range of professional backgrounds including nursing, counselling, health science and disability services. This combined expertise ensures that our team is equipped with the knowledge and skills to assist with a range of enquiries relating to epilepsy. 

Some of these queries may be about:

  • Medications
  • Lifestyle factors- such as driving, playing sport or family planning
  • NDIS planning
  • Seizure and epilepsy management
  • First aid
  • Employment

..and much more.

At Epilepsy Queensland, we understand epilepsy as a neurological condition and are able to offer support and trustworthy information that is up-to-date and accurate. 

We also understand that epilepsy can impact many areas of a person’s life as well as those close to them. To be understood and listened to confidentially can help support emotional and mental wellbeing for those impacted by epilepsy. You can expect to be treated with empathy, as well as dignity, respect and compassion with every phone call.

If your call warrants further assistance, we can put you in contact with relevant specialists or external services where possible.

Why do we offer a helpline service?

Our helpline can be a real life-line for those living in regional, rural and remote communities that may have limited access to support services or health professionals with specialist epilepsy training. Some people living with epilepsy may only see their neurologist once a year. Our helpline offers a point of contact for people to receive a more timely response to general epilepsy enquiries.

Grief counselling referrals

Grief is the normal process of reacting to a loss. The loss may be physical such as a death, social such as divorce, or occupational, such as a job or livelihood. Emotional reactions of grief can include anger, guilt, sadness, anxiety and despair.

If you are experiencing grief, you can contact Epilepsy Queensland or one of the contacts in the factsheets below.

Epilepsy Queensland