New diagnosis of epilepsy
Everyone responds differently to a new diagnosis and you may experience changing emotions throughout this time. It is important to understand that it may take time to adjust and there is no right or wrong way to feel or respond. There are resources and supports available to help you with this transition.
You may also like to connect with others through our support groups and meetups.
There can be some misunderstanding about epilepsy and seizures, but it is actually a common condition.
Epilepsy is highly individual: some people will experience seizures throughout their life, whilst others may have epilepsy for just a period of time. To learn more about epilepsy you can visit the following pages:
There are some things that you can do that will perhaps help to ease anxiety and improve your confidence to manage your newfound condition:
Whilst disclosing your health status is a personal decision, telling those close to you will help you develop strong support networks. This also ensures people are aware of your condition and can provide assistance to you should you require it.
Epilepsy Queensland delivers workshops on “Understanding epilepsy and the administration of Midazolam” and also has a great range of informative factsheets and booklets to share such as the “Diagnosing Epilepsy” booklet – click here.
Take medications as prescribed
- Try to take medication at the same time each day
- If you do miss a dose, check the medication information sheet or speak to your GP/pharmacist
- Check before taking other medications or supplements- advise your specialist
You can find more information about epilepsy treatment here.
Find a neurologist or epilepsy specialist- who do you need to see?
Finding a specialist that you can communicate openly and build a strong relationship with, is important to managing your condition. Contact our Services team if you would like to speak to someone about this.
You may also find the information on our “What to take to your neurologist” page helpful.