Share Your Story As A Case Study
You can choose to share your story and have it included as a 'case study' within our submission.
If you choose to share your story with us, you can request to have your name removed as part of our submission and it will be published on the internet 'anonymously'. Please note, as we are submitting on your behalf, we will collect your contact information through this link for consent and auditing purposes.
What to Include
Your submission (or letter) does not need to be technical and it can be as short or long as you like. To have it included with Epilepsy Queensland’s submission, it will need to be under 1,500 words.
You can choose to address some or all of the Terms of Reference (below), but you do not have to – clarity, honesty, and your perspective is what matters most.
Your submission becomes part of the official public record, helping identify shared experiences and national priorities. Only include information you would be happy to see published on the internet.
You might like to include:
Outline how you are connected to epilepsy, whether you are someone living with epilepsy, a parent or carer, or someone who works with those diagnosed e.g. disability support worker or educator
Share what your experience of epilepsy has been and any key points that stand out to you that you think policymakers should know.
Describe anything that hasn’t worked well or has made life harder. You may want to consider:
- diagnosis and treatment (your healthcare journey)
- education,
- employment,
- other social, mental health, family and financial impacts
The committee will look to submissions for ideas to make recommendations for changes and improvements. If you have any ideas for things that would make life better for you and others living with epilepsy, make sure to include them.
Add anything else you think is important for the committee to know.
Share your Story
Click the link below to anonymously share your story as a 'case study'
Submissions close 5 May, 2026
More information on the Senate Inquiry is available on the Parliament of Australia website.
Terms of Reference
Epilepsy in Australia, with particular reference to:
1. barriers to diagnosis and access to appropriate treatment options, including the impact of factors such as:
- geographic locations,
- availability of medical practitioners, including neurologists,
- costs, and
- cultural and language barriers;
2. drug-resistant epilepsy and its psychosocial and economic impacts on patients and the community;
3. the level of community awareness and understanding of epilepsy and treatment options;
4. barriers to access support services after diagnosis, including the National Disability and Insurance Scheme;
5. the adequacy of Commonwealth funding for research into epilepsy; and
6. any other related matters.